Daily Prompt: Helpless

Helplessness: that dull, sick feeling of not being the one at the reins. When did you last feel like that –- and what did you do about it?

ImageKayleigh in the NICU

I feel the most helpless when my kids are sick. Even more so when it comes to things that Dr. Mom can’t fix.

When Kayleigh was born we had several hours of snuggling with her and her twin brother. Just becoming a family and enjoying the wonder that is a newborn baby. That is until a nurse came into the room and said “We need to take Kayleigh for some tests. The Dr. will be in to talk to you shortly.” I handed my little girl over to her and promptly burst into tears.

The Dr came in and told us that they thought Kayleigh had Hirschsprung’s Disease. That there was a very large section of her colon without nerve endings. And without them her body didn’t get the signal to move bowel movements along.

When she was less than a week old Kayleigh had major surgery to remove the non-working part of her colon. She had a colostomy and spent over 6 weeks in the NICU. I felt completely helpless. We were there everyday with her, holding and loving on her when they let us. But her recovery was completely out of our hands. All we could do was hang on and pray.


About marillionflower

Mom of 5 amazing kids from 21 to 4 years old. Grandma to a beautiful baby girl. Married to the love of my life and loving life in South Dakota
This entry was posted in Down Syndrome, Kayleigh, Postaday and tagged , , , . Bookmark the permalink.

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